Patient Videos

Module 1: Understanding MPNs

Ben: How did you find out you had a myeloproliferative neoplasm (MPN)?

In this video, Ben shares how he was unexpectedly diagnosed with a myeloproliferative neoplasm (MPN) during routine bloodwork for a new job. His high platelet count led to further testing and a diagnosis of essential thrombocythemia (ET). Reflecting back, Ben realized that earlier symptoms like migraines and easy bruising may have been early signs of the condition.

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Ben: What challenges and successes have you had with your MPN treatment?

In this video, Ben discusses the challenges and successes he's faced during his MPN treatment journey. Initially diagnosed with essential thrombocythemia (ET), his condition later progressed to myelofibrosis (MF). He struggled early on with limited information and a provider who dismissed his symptoms. After switching to a provider with more expertise in MPNs, his treatment improved significantly. A major milestone was his successful stem cell transplant. Today, Ben values the support he received and shares his story to help others facing similar challenges.

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Ben: What advice do you have for others on their journey with MPN?

In this video, Ben offers advice to others living with a myeloproliferative neoplasm (MPN) . He emphasizes the importance of being your own advocate by asking questions, speaking up, and seeking answers when something doesn't feel right. He also highlights the value of a strong support system, encouraging others not to face challenges alone. Ben credits his own journey's success to supportive family, friends, and connections with others who've experienced similar treatments.

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This educational activity has been developed by MPN Research Foundation in collaboration with Mechanisms in Medicine Inc.

This activity is supported by independent educational grants from Disc Medicine, Incyte, Merck and PharmaEssentia.

Thank you to the funders of You And MPN. All content is developed independently by MPN Research Foundation and Mechanisms in Medicine Inc., in collaboration with an Expert Faculty group; funders are allowed no influence on the content of You And MPN: Animated Patient^® Guide to Myeloproliferative Neoplasms.

Disclaimer: The information provided is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always consult your doctor about any questions you may have regarding a medical condition. The visuals provided are meant to be representations only. No specific brand is being promoted or endorsed.

This website is part of the Animated Patient^® series developed by Mechanisms in Medicine Inc., to provide highly visual formats of learning for patients to improve their understanding, make informed decisions, and partner with their healthcare professionals for optimal outcomes.